Thursday, April 19, 2012

Diagnosis

Blogger is different? weird?

So here it is......
Evie was diagnosed with Sensory Processing Disorder, Hypotonia (low muscle tone), and Speech Disorder (not specified- read below)

Sensory Processing Disorder (soon to be changed to Dysfunction so that it falls into the DSM-4), is what causes her little body to go into overdrive in social situations, causes her to not like to touch things with odd textures, and causes her to rock! We will continue with our OT from ECI for this disorder.

Hypotonia or low muscle tone, is what is causing her to not be able to support herself sitting upright in the correct position. It is also what is creating her problem with walking. She walks with her knees together and feet inward. The doctor thinks that the muscle tone might also be playing a part in her speech. A few months ago Evie fell at the babysitters and her front teeth went through her gums. This is partly because her mouth isn't as strong as most kids. We are going to be starting Physical therapy for this as soon as we get the papers done.

Speech Disorder, this was our origional concern. From what I learned today, Evie has an expressive and receptive speech delay. She doesn't put words out and has a small problem taking them in. She qualified origionally as a 3-6 month old on speech and we might* be at the point of a 12 month old now speech wise. So, we will continue seeing our rocking cool speech therapist at Pro Steps for speech and letting them help us grow.

What does this mean for Evie?
She is special, she has special needs and she will always have special needs. The doctor today made it very clear that she was cognitevly very on target. She is a smart girl, but will always need some help. We will hopefully do 1/2 PPCD and 1/2 private pre-school when she turns 3.

I feel like I am completly blessed to be have been chosen as her mommy. She wasn't supposed to be here- she is our magic suprise in life- and boy did God give us a suprise with her! He knew what he was doing when he brought us to Dumas, he knew that we were going to need a small town and a wonderful close knit school district to raise her in. God knew that we needed lots of hands to help get to and from therapist and school and doctors. AND he knew that she belonged in our family. I am always amazed by how HIS plans work out in the most mysterious of ways.

Right now, our greatest prayer is that we get some help financially through either medicaid or our insurance to help with therapy costs. Then, we need prayers that our other 2 kids understand what is going on with Evie. Avry asked me today if we figured out why Evie was "special" yet!

Thank you for all caring and understanding and listening and being there for Greg and I. We are truly blessed by the amount of love we have seen in our marriage (and lifetimes). Without our friends and family we would not be who we are!

Sarah

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